Featured Services
Types of ResourcesWhat is Cystic Fibrosis?
Cystic Fibrosis is an inherited disease that involves increased mucus production by the respiratory system, increased susceptibility to respiratory infections and poor absorption of nutrients by the digestive system.
Our Services
- Accurate testing and diagnosis are important. Our services include genetic and sweat testing as well as new born screening for cystic fibrosis.
- Newborn screening
- After diagnosis, our dedicated team will work with you and your child to develop a plan of treatment, discuss medications and offer education for all involved in the care of your loved one.
The Cystic Fibrosis Foundation - Adding Tomorrows Every Day
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly CF drug available today was possible because of Foundation support.
We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
CF Pharmacy
CF Services is a wholly owned subsidiary of the Cystic Fibrosis Foundation and was established in 1988 as a specialty pharmacy specializing in CF medications, patient advocacy and reimbursement support. CF Services is a full-service pharmacy and your one-stop shop for all your prescription medication needs. Since its inception in 1988, CF Services is unequaled in providing outstanding pharmacy services for individuals with CF.
CLICK HERE to learn more.
CF Resources
Foundations
The Cystic Fibrosis Foundation: www.cff.org
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.
We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
The Boomer Esiason Foundation: www.esiason.org
Great Strides 2013: http://www.cff.org/great_strides/
Scholarship Information
Cystic Fibrosis Foundation: http://www.cff.org/LivingWithCF/Scholarships/
CF CareForward: http://www.cfcareforwardscholarship.com
The CF Team
Physicians and Fellows
A medical doctor (MD) will coordinate your child's care at the Cystic Fibrosis Center. Doctors make the initial diagnosis and work with the entire family on a treatment plan. Our physicians will follow your child as he or she grows to make sure their condition is always under the best control.
Nurse Practitioners
A Nurse Practitioner (NP) is a registered nurse who has completed advanced nursing education (generally a master's degree or doctoral degree) and training in the diagnosis and management of common as well as a few complex medical conditions.
Clinic Nurses
Our clinic nurses provide all levels of nursing care including the administration of medicines. They also manage the day-to-day flow of patients in our clinic.
Dietitians
Understanding what to eat and how to make your diet work is an important and challenging task in managing CF. To help you master this skill, our dietitians will meet with you at diagnosis and follow up regularly as your child grows and develops.
Social Worker
Having a child with CF can drain your physical, financial, and emotional resources. Our clinic has the support of a social worker to help you manage these special challenges.
Respiratory Therapists
Respiratory therapists help people breathe who need help and, using highly technical equipment, breathe for those who cannot breathe on their own. Our respiratory therapists also help to diagnose and treat respiratory illness.
Child Life Specialists
Managing CF can be very stressful for a child of any age and their family. Our child life specialists can help children and families make necessary adjustments to new tasks and can help them talk about their fears and concerns.