Congenital heart surgery - discharge; Patent ductus arteriosus ligation - discharge; Hypoplastic left heart repair - discharge; Tetralogy of Fallot repair - discharge; Coarctation of the aorta repair - discharge; Heart surgery for children - discharge; Atrial septal defect repair - discharge; Ventricular septal defect repair - discharge; Truncus arteriosus repair - discharge; Total anomalous pulmonary artery correction - discharge; Transposition of great vessels repair - discharge; Tricuspid atresia repair - discharge; VSD repair - discharge; ASD repair - discharge; PDA ligation - discharge; Acquired heart disease - discharge; Heart valve surgery - children - discharge; Heart surgery - pediatric - discharge; Heart transplant - pediatric - discharge
When Your Child Was in the Hospital
Your child had surgery to repair a heart defect. If your child had open-heart surgery, an incision was made through their breastbone or the side of your child's chest. The child also may have been put on a heart-lung bypass machine during surgery.
After the surgery, your child probably stayed in the intensive care unit and then in another part of the hospital.
What to Expect at Home
Your child will need at least 3 or 4 more weeks at home to recover. For larger surgeries, recovery may take 6 to 8 weeks. Talk with your child's doctor about when your child can return to school, daycare, or participate in sports.
Pain after surgery is normal. There may be more pain after closed-heart surgery, compared to open-heart surgery. This is because nerves may have been irritated or cut. Usually, the pain decreases after the second day and con sometimes be managed with acetaminophen (Tylenol).
Many children behave differently after heart surgery. They may be clingy, irritable, wet the bed, or cry. They may do these things even if they were not doing them before their surgery. Support your child through this time, and slowly begin to set the limits that were in place before the surgery.
If your child is an infant, try not to let them cry for too long for the first 3 - 4 weeks. Help keep them calm by staying calm yourself. When lifting your child, support both their head and bottom for the first 4 - 6 weeks.
Toddlers and older children will often stop any activity if they become tired.
The doctor or nurse will tell you when it is okay for your child to return to school or daycare.
Most often, the first few weeks after surgery should be a time to rest.
After the first follow-up visit, the doctor will tell you what the child can do.
For the first 4 weeks after surgery, your child should not do any activity where there is a chance they could fall or take a blow to the chest. Your child also should avoid bicycle or skateboard riding, roller skating, swimming, and all contact sports until the child's doctor says it's okay.
If your child has an incision through the breastbone, you must be careful how they use their arms and upper body for the first 6 - 8 weeks:
Do not pull or lift the child by their arms. Scoop them up instead.
Your child should not do any activities that involve pulling or pushing their arms.
Try to keep your child from lifting their arms above their head.
Your child should not lift anything heavier than 5 pounds.
Keep a close eye on your child’s diet to make sure they get enough calories to heal and grow.
After heart surgery, most babies and infants (younger than 12 to 15 months) can take as much formula or breast milk as they want. Sometimes the doctor may want your baby not to drink too much formula or breast milk. Ask your child’s doctor any other questions about your child's nutrition.
Limit feeding time to around 30 minutes. Your child’s doctor or nurse will tell you how to add extra calories to formula if it is necessary.
Toddlers and older children should be given a regular, healthy diet. The doctor or nurse will tell you how to improve the child's diet after surgery.
Your health care providers will instruct you on how to care for the incisions. Look at the wound for signs of infection, which are redness, swelling, and drainage.
Your child should take only a shower or a sponge bath until your health care provider says it's okay. Their Steri-Strips should NOT soak in the water. Steri-Strips will begin to peel off after the first week. It is okay to remove them when they start to peel off.
For as long as the scar looks pink, make sure it is covered with clothing or a bandage when your child is in the sun.
Ask your child’s doctor before getting any immunizations for 2 - 3 months after surgery. Afterward, your child should have a flu shot every year.
Many children who have had heart surgery must take antibiotics before, and sometimes after, having any dental work. Make sure you have clear instructions from your child’s heart doctor when the child needs antibiotics. It is still very important to have your child's teeth cleaned regularly.
Your child may need to take medicine when they are sent home. These may include diuretics (water pills) and other heart medicines. Be sure to follow the correct dosage. Follow up with your doctor 1 - 2 weeks after the child leaves the hospital or the as instructed.
When to Call the Doctor
Call the doctor if your child has:
Fever, nausea, or vomiting
Chest pain, or other pain
Redness, swelling, or drainage from the wound
Difficulty breathing or shortness of breath
Puffy eyes or face
Tiredness all the time
Bluish or grayish skin
Dizziness, fainting, or heart palpitations
Feeding problems or reduced appetite
Pigula FA, Del Nido, PJ. Neonatal and infant cardiac surgery. In: Keane JF, Lock JE, Fyler DC, eds. Nadas’ Pediatric Cardiology, 2nd ed. St. Louis, Mo; WB Saunders; 2006:chap 57.
Recommendations for preparing children and adolescents for invasive cardiac procedures: A statement from the American Heart Association Pediatric Nursing Subcommittee of the Council on Cardiovascular Nursing in collaboration with the Council on Cardiovascular Diseases of the Young. Circulation. 2003;108:2250-2564.
Congenital heart disease. In: Townsend CM Jr, Fraser CD Jr, Carberry KE, eds. Sabiston Textbook of Surgery. 19th ed. Philadelphia, Pa: Saunders Elsevier; 2012:chap 59.
Kurt R. Schumacher, MD, Pediatric Cardiology, University of Michigan Congenital Heart Center, Ann Arbor, MI. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.